A Carer Role Profile shows the sort of knowledge that those affected by stroke may find useful; it can be used in many ways:

  • If you have been affected by stroke you may be unsure about the sort of information that you need; the Carer Profile shows you the sort of knowledge that you may find useful;

  • If we are to provide useful courses for those affected by stroke, we need to know what should be included; the Carer Profile shows what should be included and at what level;

  • If you wish to attend a course, you may wonder if it will include the information that is relevant to you; the Carer Profile will show you the sort of information you want.


Download the Carer Profile here.
Download the Carer Profile (Accessible version) here.
Profile AverageKnowledgeE1E2E3E4E5E6E7E8E9E10E11E12E13E14E15E16
Elements coveredKnowledge
E1: Awareness raising0.7
E2: Managing risk0.6
E3: Information0.9
E4: User involvement0.0
E5: Assessment (TIA)0.0
E6: Treatment (TIA)0.0
E7: Urgent response0.0
E8: Assessment (stroke)0.0
E9: Treatment (stroke)0.0
E10: Specialist rehabilitation0.0
E11: End-of-life care0.9
E12: Seamless transfer of care0.0
E13: Long-term care1.2
E14: Review0.0
E15: Participation in community0.0
E16: Return to work0.0
E1Awareness raisingLevel
Knowledge and understanding of…
e1k_1Signs and symptoms of stroke1
e1k_2Features of less common (atypical) presentation of stroken/a
e1k_3Stroke mimics and likely presentationn/a
e1k_4Stroke and TIA as medical emergencies2
e1k_5Emergency response, investigations, interventions and treatments for stroke and TIAn/a
e1k_6Timeframe for emergency investigations, interventions and treatments for stroke and TIA1
e1k_7Anatomy and physiology of the central nervous systemn/a
e1k_8Timeframe of physiological and neurological changes during a stroke1
e1k_9Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations1
E2Managing riskLevel
Knowledge and understanding of…
e2k_1Risk factors for stroke and TIA (e.g. lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities)1
e2k_2Stroke types and their aetiologies1
e2k_3Risk of stroke depending on type and aetiologyn/a
e2k_4Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations1
e2k_5Who provides interventions for primary and secondary prevention of stroken/a
e2k_6Pharmacological and non-pharmacological interventions for primary and secondary prevention of stroke, and side effects of treatmentn/a
e2k_7Methods of changing behaviour 1
E3InformationLevel
Knowledge and understanding of…
e3k_1Stroke types and their aetiologies1
e3k_2Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities) n/a
e3k_3Pharmacological and non-pharmacological interventions for primary and secondary prevention of stroke, and side effects of treatmentn/a
e3k_4Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations1
e3k_5Who provides interventions for primary and secondary prevention of stroken/a
e3k_6Full range of services (health, social, community, voluntary and independent) available locally for those affected by stroke2
e3k_7How to assess and overcome barriers to problems: psychological and emotional; social and relationship; cognitive and communication; physical and functional; visual and sensory impairments and pain; medicaln/a
e3k_8The impact of stroke on the individual, carer and family2
e3k_9The implications of stroke for lifestyle, driving, work and family2
e3k_10Methods of changing behaviour 1
E4User involvementLevel
Knowledge and understanding of…
e4k_1The services relevant for stroke patients and carersn/a
e4k_2How to assess and overcome barriers to problems: psychological and emotional; social and relationship; cognitive and communication; physical and functional; visual and sensory impairments and pain; medicaln/a
e4k_3Methods to empower patients; patient advocacyn/a
e4k_4Methods that can be used to involve stroke patients and carers in service planningn/a
e4k_5Methods that can be used to capture stroke patient and carer viewsn/a
e4k_6Methods for using views to influence servicesn/a
e4k_7Factors that influence people’s ability to be involved in care and service planningn/a
e4k_8Methods of feeding back to stroke patients and carers how their contributions have influenced servicesn/a
e4k_9How service planning and decision making processes work and how they can be influencedn/a
E5Assessment (TIA)Level
Knowledge and understanding of…
e5k_1Anatomy and physiology of the central nervous systemn/a
e5k_2Risk factors for stroke and TIA (e.g. lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities)n/a
e5k_3The signs and symptoms of TIAn/a
e5k_4How to distinguish between stroke and TIAn/a
e5k_5The future risk of stroke and TIA (e.g. ABCD2 and other risk scoring methods)n/a
e5k_6The features of atypical presentation of TIA/stroke and mimics and how to act when they are identifiedn/a
e5k_7Investigations, interventions and treatments for TIA (e.g. imaging, vascular, medical, cardiac, surgical)n/a
e5k_8Implications of the Mental Capacity Act and how it applies to TIAn/a
e5k_9Advocates for stroke and TIA patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirationsn/a
e5k_10The timeframe for emergency and follow-on investigations, interventions and treatments for TIAn/a
e5k_11How to initiate emergency and ongoing treatment for TIA and vascular preventionn/a
E6Treatment (TIA)Level
Knowledge and understanding of…
e6k_1The signs and symptoms of TIAn/a
e6k_2Atypical presentation of TIA and TIA mimics and how to act when they are identifiedn/a
e6k_3How to distinguish between stroke and TIAn/a
e6k_4Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities) n/a
e6k_5Pharmacological and non-pharmacological interventions, and the level of urgency for risk factor managementn/a
e6k_6Side effects of pharmacological and non-pharmacological interventions as well as the prevention and management of vascular eventsn/a
e6k_7Late complications of surgical procedures (e.g. stenting, carotid endarterectomy, closure of ASD and PFO) and the implications of the procedures on lifestylen/a
e6k_8Implications of TIA for lifestyle, driving, work and familyn/a
e6k_9Potential interventions for immediate and ongoing risk factor managementn/a
e6k_10Methods of changing behaviour n/a
e6k_11How QOF and community targets for risk factor management affect prevention strategiesn/a
E7Urgent responseLevel
Knowledge and understanding of…
e7k_1Signs and symptoms of stroken/a
e7k_2Features of less common (atypical) presentation of stroken/a
e7k_3Stroke mimics and likely presentationn/a
e7k_4Stroke and TIA as medical emergenciesn/a
e7k_5Emergency response, investigations, interventions and treatments for stroke and TIAn/a
e7k_6The timeframe for emergency investigations, interventions and treatments for stroke and TIAn/a
e7k_7The anatomy and physiology of the central nervous systemn/a
e7k_8The physiological and neurological effects of stroke and their timeframe during and after a stroken/a
e7k_9Monitoring and acting upon physiological and neurological changes during and after a stroken/a
e7k_10How stroke can affect communicationn/a
e7k_11Implications of the Mental Capacity Act and how it applies to TIAn/a
E8Assessment (stroke)Level
Knowledge and understanding of…
e8k_1The signs and symptoms of stroken/a
e8k_2The neurological and physiological effects of stroke and the timeframe of changes during and after a stroken/a
e8k_3How to monitor, and act upon, neurological and physiological changes during and after a stroken/a
e8k_4Implications of the Mental Capacity Act and how it applies to stroke and TIAn/a
e8k_5Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirationsn/a
e8k_6Features of atypical presentation of stroke and stroke mimicsn/a
e8k_7Stroke types and their aetiologiesn/a
e8k_8Different modalities to facilitate diagnosis and treatment of stroke (e.g. telemedicine)n/a
e8k_9Emergency investigations (e.g. imaging of brain, heart and cerebral arteries, blood tests) and interventions for stroke (e.g. intravenous and intra-arterial thrombolysis, vascular surgery, stenting, hemicraniotomy, evacuation of haematoma) and the timeframe within which they should be givenn/a
e8k_10The indications and contraindications for investigations, interventions and treatments for stroken/a
e8k_11Any complications of investigations, interventions and treatments for stroke and how to prevent and manage themn/a
E9Treatment (stroke)Level
Knowledge and understanding of…
e9k_1Signs and symptoms of stroken/a
e9k_2Neurological and physiological effects of stroke, monitoring, and the timeframe of changes, during and after a stroken/a
e9k_3The need for early mobilisation and positioningn/a
e9k_4Assessing swallowing and managing of dysphagian/a
e9k_5Alternative methods of feeding, hydration and drug administration for patients with dysphagian/a
e9k_6The interactions between enteral feeds, fluids and drug treatmentn/a
e9k_7The effects of stopping ongoing drug treatment because of swallowing problemsn/a
e9k_8Symptoms and effects of malnourishmentn/a
e9k_9The importance and methods of oral hygienen/a
e9k_10The importance of avoiding catheters, as well as managing retention and promoting continencen/a
e9k_11Assessing and managing problems: psychological and emotional; social and relationship; cognitive and communication; physical and functional; sensory impairment and pain; medicaln/a
E10Specialist rehabilitationLevel
Knowledge and understanding of…
e10k_1The impact of stroke on the individual, carer and familyn/a
e10k_2Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirationsn/a
e10k_3The implications of stroke for lifestyle, driving, work, family and acceptance in the communityn/a
e10k_4MDT assessment: the principles of stroke rehabilitation and rehabilitation referral; therapy techniques and their applicationn/a
E10k_5A range of neurological treatment approaches and their applicationsn/a
e10k_6Psychological and emotional problems after stroke (e.g. depression, emotionalism, anxiety, self esteem, confidence, well-being, challenging behaviour)n/a
e10k_7Social and relationship problems after stroke (e.g. sex, lifestyle, work, housing, driving, transport, leisure, financial/ income, work/employment, children, family, support network, carers, respite, pets)n/a
e10K_8Cognitive and communication problems after stroke (e.g. spatial awareness (neglect/inattention); visual field deficits; hemianopia; memory; attention; praxis; executive function; aphasia, dysarthria, articulatory dyspraxia)n/a
e10k_9Physiological, physical and functional problems after stroke (e.g. rest and sleep; respiratory, mobility; balance; senses; incontinence; bladder and bowel management; swallowing; feeding, nutrition and hydration; skin integrity; sexual; motor control; ADL)n/a
e10k_10Neurological, visual and sensory impairments and pain problems (e.g. shoulder pain, central post-stroke pain, spasticity, seizures)n/a
e10k_11Medical problems (e.g. medication, comorbidities, complications)n/a
E11End-of-life careLevel
Knowledge and understanding of…
e11k_1End-of-life care strategies, advanced directives, and palliative care tools in relation to stroke2
e11k_2The implications of the Mental Capacity Act for stroke patients1
e11k_3Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations1
e11k_4The range of support groups and services for those affected by stroke with palliative care needs2
e11k_5The needs and aspirations of those affected by stroke (i.e. patient, carer and family)1
e11k_6The assessment and management of problems, how they can be controlled and the implications for prognosis: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medicaln/a
e11k_7Pharmacological and non-pharmacological interventions for end-of-life care after stroken/a
e11k_8The side effects of pharmacological and non-pharmacological interventions for end-of-life care after stroken/a
E12Seamless transfer of careLevel
Knowledge and understanding of…
e12k_1The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical; and how to involve users and carersn/a
e12k_2Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirationsn/a
e12k_3The implications of stroke for lifestyle, driving, work and familyn/a
e12k_4Methods to facilitate communication with those affected by stroken/a
e12k_5Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport) including exit strategiesn/a
e12k_6The principles of good planning for transition between services or cessation of services and for transfer of care to the community, including the education of those affected by stroken/a
e12k_7All agencies that are potentially involved along the whole of the Stroke Pathwayn/a
e12k_8The principles of multi-agency workingn/a
E13Long-term careLevel
Knowledge and understanding of…
e13k_1The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical1
e13k_2Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations1
e13k_3The needs and aspirations of those affected by stroke, particularly those related to the problems listed above, and how these needs and aspirations can be met1
e13k_4The impact of stroke on the individual, carer and family2
e13k_5The implications of stroke for lifestyle, driving, work and family2
e13k_6Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities) n/a
e13k_7Pharmacological and non-pharmacological interventions for secondary prevention and to facilitate recovery after stroke and their side effects1
e13k_8Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self-management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport)2
e13k_9Assistive technology and other therapy interventions (e.g. functional electrical stimulation, orthotics)1
e13k_10Methods to facilitate communication with those affected by stroke1
e13k_11Concordance: how to assess; how it is affected by individual preference; how to motivate; how to manage non-concordance1
E14ReviewLevel
Knowledge and understanding of…
e14k_1The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medicaln/a
e14k_2Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirationsn/a
e14k_3The needs and aspirations of those affected by stroke, particularly those related to the problems listed above, and how these needs and aspirations can be metn/a
e14k_4Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self-management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport)n/a
e14k_5The impact of stroke on the individual, carer and familyn/a
e14k_6The implications of stroke for lifestyle, driving, work and familyn/a
e14k_7Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities) n/a
e14k_8Pharmacological and non-pharmacological interventions for secondary prevention and how to help recovery after stroken/a
e14k_9Side effects of risk factor interventions and treatments to help with recovery after stroken/a
e14k_10Methods to help communication with those affected by stroke when conducting a reviewn/a
e14k_11Concordance: how to assess; how it is affected by individual preference; how to motivate; how to manage non-concordancen/a
E15Participation in communityLevel
Knowledge and understanding of…
e15k_1The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medicaln/a
e15k_2Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirationsn/a
e15k_3The needs and aspirations of those affected by stroke, particularly those related to the problems listed above, and how these needs and aspirations can be metn/a
e15k_4Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self-management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport)n/a
e15k_5The impact of stroke on the individual, carer and familyn/a
e15k_6The implications of stroke for lifestyle; driving; work, including voluntary and familyn/a
e15k_7Methods to help communication with those affected by stroke, including when conducting a reviewn/a
E16Return to workLevel
Knowledge and understanding of…
e16k_1The effects of stroke (cognitive, physical, sensory, visual, emotional, confidence) and how it may affect a return to work and/or education
e16k_2Assessing the effects of stroke (cognitive, physical, sensory, visual, emotional, confidence)n/a
e16k_3Employment law, the Disability Discrimination Act, health and safety at workn/a
e16k_4The roles of healthcare and other professionals in employment-related services (occupational health, occupational psychologist, disability employment adviser)n/a
e16k_5The occupational therapist’s role in vocational rehabilitationn/a
e16k_6Jobcentre Plus, its services and its effectiveness for stroken/a
e16k_7What is meant by “reasonable adjustment” in the workplace, how to adapt or instigate adaptation to the work environment and the employer’s responsibilityn/a
e16k_8Available helpful technology for overcoming functional and activity limitations in the workplacen/a
e16k_9Ergonomic principles and how to overcome access issuesn/a
e16k_10Return to work educationn/a
e16k_11Health, work and well-being – the role of purposeful occupation and the detrimental effects of worklessnessn/a